Posted by vanessa on April 26, 2018
We are pleased to announce that core faculty member Jacqueline Montes, PT, EdD, NCS, has been awarded a supplemental grant for her NIH K01 study, “Oxidative Capacity in SMA (Spinal Muscular Atrophy)”.
The grant is funded by the Muscular Dystrophy Association (MDA) with the aim of addressing the issue of recruiting patients who cannot afford travel expenses. The MDA recognizes that travel to clinical trial sites can pose a serious financial burden to those who wish to participate in clinical research. Dr. Montes applied for the grant in order to help alleviate the cost burden of such travel and provide equitable access to the study for all interested SMA and mitochondrial myopathy patients.
The award is for $67,620 and provides a stipend of $1,470 to cover travel expenses for each participant and a caregiver or companion for both study visits. To date, study inquiries largely come from internet resources, such as clinicaltrials.gov, and a good portion of eligible candidates live outside of the greater New York area. For example, several potential participants from California, Florida and Minnesota have expressed great interest but cite lack of funds as a barrier for enrolling.
Providing a patient allowance that facilitates travel from outside our region will make participation feasible for many patients and thus allow the study to meet its target enrollment.
For more information about the MDA travel grants, visit https://www.mda.org/research/funding-opportunities, or contact Dr. Montes at firstname.lastname@example.org
Dr. Jacqueline Montes demonstrating SMA testing with DPT student